To the issue of the health comprehensive assessment of children who underwent surgical correction of congenital heart diseases

Aim. To find out the problems in children health in long-time postoperative period after cardiosurgery using the comprehensive method for creating rehabilitation program.

Methods. A prospective investigation of group of children was done before (n = 88) and in a year (n = 115), in 2 years (n = 90) and in 3 years (n = 58) after the surgical correction of congenital heart defects on the base of Kuzbass cardiological center. The anamnesis, clinical and hemodynamic aspects were studied as well as the postoperative period, residual problems after the correction, social status of the family and the comprehensive assessment was done in the both groups.

Results. Before the correction the most part of children had low and very low levels of physical functioning, but there was a positive dynamic right after the surgery: the most part of children had high and middle levels (13% and 44% in a year), while the amount of children with low and very low data were reduced. Nevertheless, in 3 years after the surgery the amount of children with low and very low data was increased while the hemodynamic became better. Such tendency was mentioned with all aspects of the health.

Conclusion. Despite of hemodynamic normalization the quality of life with all aspects still suffers. It predicts dangers in development and quality of life in general.

1. Войцехович Б.А. К вопросу о распространённости врожденных пороков развития. Проблемы социальной гигиены и здравоохранения.2000;4.7-11

2. Володин Н.Н. Неонатологи: национальное руководство.М.:ГЭОТАР-Медиа,2009.848с

3. Karpova A.L., Bokerija E.L., Nikolaeva T.N., Spivak E.M., Mostovoj A.V., Marasina A.V. Screening technologies for the detection of congenital heart defects in newborns. Neonatologija: novosti, mneniya, obuchenie 2016; 2: 40-49. (in Russ)

4. Кондратьев В.А. Врожденные пороки сердца до и после операции. Таврич.мед.-биол.вест.2005;8.(2):76-82.

5. Lyubimova M.A., Chernenkov Yu.V., Panina O.S., Lavrova D.B. Neonatal sepsis: the clinical case // Saratov Journal of Medical Scientific Research. 2013. Vol. 9, № 1. P. 106–109. (in Russ)

6. Saperova E.V., Vahlova I.V. Congenital Heart Diseases in Children: Incidence, Risk Factors, Mortality. Current Pediatrics. 2017;16(2):126-133. (In Russ.) https://doi.org/10.15690/vsp.v16i2.1713

7. Khabibullina A.R., Khayretdinova T.B. Effects of parenting behaviours on physical activity of toddlers with congenital heart disease. Complex Issues of Cardiovascular Diseases. 2019;8(3):36-42. (In Russ.) https://doi.org/10.17802/2306-1278-2019-8-3-36-42

8. Shkol’nikova M.A., Bokerija E.L., Degtjareva E.A., Il’in V.N., Sharykin A.S. Neonatal screening to identify critical congenital heart defects. Guidelines. Moscow: M-Art, 2012; 36. (in Russian)

9. Gregory M.B., Prouhet P.M., Russel C.L., Pfannenstiel B.R. Quality of Life for Parents of Children with Congenital Heart Defect: a systematic review. J Cardiovasc Nurs 2018; 33(4); 363-371

10. Knowles R.L., Day T., Wade A., Bull C., Wren C., Dezateux C. Patient-reported quality of life outcomes for children with serious congenital heart defects. Archives of Disease in Childhood.2014;99:413-419.doi:10.1136/archdischild-2013-305130

11. Murariu C,. Negut A., Popescu M.I. Quality of life of children with congenotal heart disease. Acta Media Transilvanica.2015;20(3);28-31

12. Varni J.W. Scaling and Scorig of the pediatric quality of life inventory.PedsQL3.0 Cardiac Module.Version 17;2017.40-46